Friday, July 24, 2015

The World Of Mismatched Socks

I bring to your attention adults with special needs. There are a lot of early intervention programs and things in schools to help children with special needs and that's great that's wonderful. The thing is people forget that special needs children grow to be special needs adults. People seem to think that given the right tools and taught the right things those with special needs won't have special needs anymore they'll overcome it it'll just go away. Many people in America and other countries tend to treat adults with special needs as if they are the elephant in the room and those with special needs are paying a big price for that. Many of those with special needs such as Autism/Asperger's, ADD, ADHD, Down Syndrome, Bi-Polar, Tourette's and etc are homeless without any help or assistance at all because they have been ignored. Sure they are taught in schools but after school that's it no more help or assistance it's all gone. They are left to fend for themselves. Now some of you may say there is government assistance for those with special needs called SSI. Supplemental Security Income (SSI) is a Federal income supplement program funded by general tax revenues (not Social Security taxes):  It is designed to help aged, blind, and disabled people, who have little or no income; and it provides cash to meet basic needs for food, clothing, and shelter. Social Security's disability definition is based on your inability to work. They consider you disabled under Social Security rules if: you cannot do work that you did before, they decide that you cannot adjust to other work because of your medical condition(s), and your disability lasts or is expected to last for at least one year or to result in death. The tool they use to see if you are eligible for disability benefits is called the BEST Tool.  Benefit Eligibility Screening Tool (BEST) BEST helps you find out if you could get benefits that Social Security administers. Based on your answers to questions, this tool will list benefits for which you might be eligible and tell you more information about how to qualify and apply BEST is not application for benefits and does not know or ask for your name or SSN, does not access your personal Social Security records and will not give you an estimate of benefit amounts. BEST will not screen for help with Medicare prescription drug costs if you have Medicare you might be eligible for this program. I decided that I would use this tool for myself and see what would happen. There were twenty-four questions on the BEST Tool and it only asks very general questions about your income and assets, citizenship, living arrangements and your disability. When you contact Social Security to apply for benefits, they will ask you for more detailed information. When I say detailed I really truly mean detailed they ask about everything if you volunteer at all (they figure if you can volunteer you can work and no don't need their assistance), any previous employment at all, how old you are, work skills, education, your income if any, marital status, where do you live, transportation, family medical history, your hobbies, your disabilities what does it stop you from doing how does it hinder you and believe me (as I have been through this process) they will interview you and diagnose you to death (not literally of course but it will feel that way.) They will also ask you if you are married and depending on your spouse's income if you are married if your spouse makes a certain amount of income they can turn you down for assistance if they think your spouse makes enough to support you and your spouse and if you get benefits and then marry after you get benefits then your benefits will stop if you marry regardless of your spouse's income. Each person who files a disability claim is responsible for providing medical evidence showing he or she has an impairment(s) and the severity  of the impairment(s). However, the Social Security Administration (SSA), with  the claimant’s permission, will help the claimant get medical reports from his  or her own medical sources. This medical evidence generally comes from sources that  have treated or evaluated the claimant for his or her impairment(s). Even with providing them with all that information from past doctors and diagnosis that you will still have to be re-diagnosed with the SSA's doctors. Documentation of the existence of a claimant's  impairment must come from medical professionals defined by SSA regulations as  "acceptable medical sources." Once the existence of an impairment is established, all the medical and non-medical evidence is considered in assessing impairment severity. Currently, many disability claims are decided based on medical evidence from treating sources. SSA regulations place special emphasis on evidence from treating sources because they are likely to be the medical  professionals most able to provide a detailed longitudinal picture of the claimant's impairment(s) and may bring a unique perspective to the medical evidence that cannot be obtained from the medical findings alone or from reports of individual examinations or brief hospitalizations. Therefore, timely, accurate, and adequate medical reports from treating sources accelerate the processing of the claim because they can greatly reduce or eliminate the need for additional medical evidence to complete the claim. SSA also requests copies of medical evidence from hospitals, clinics, or other health facilities where a claimant has been treated. All medical reports received are considered during the disability determination process. Information from other sources may also help show the  extent to which an individual's impairment(s) affects his or her ability to  function in a work setting; or in the case of a child, the ability to function  compared to that of children the same age who do not have impairments. Other  sources include public and private agencies, non‑medical sources such as schools,  parents and caregivers, social workers and employers, and other practitioners  such as naturopaths, chiropractors, and audiologists. Physicians, psychologists, and other health  professionals are frequently asked by SSA to submit reports about an individual's impairment(s). Therefore, it is important to know what evidence SSA needs and they need a lot of it trust me. If the evidence provided by the claimant's own medical sources is inadequate to  determine if he or she is disabled, additional medical information may be  sought by recontacting the treating source for additional information or  clarification, or by arranging for a consultative examination (CE). The  treating source is the preferred source for a CE if he or she is qualified, equipped, and willing to perform the examination for the authorized fee. Even if only a supplemental test is required, the treating source is ordinarily the preferred source for this service. However, SSA’s rules provide for using an  independent source (other than the treating source) for a CE or diagnostic study if: the treating source prefers not to perform the examination; the treating source does not have the equipment to provide the specific data needed; there are conflicts or inconsistencies in the file that cannot be resolved by going back to the treating source; the claimant prefers another source and has good reason for doing so; or they know from prior experience that the treating source may not be a productive source. The Listing of  Impairments describes, for each major body system, impairments considered  severe enough to prevent an individual from doing any gainful activity (or in  the case of children under age 18 applying for SSI, severe enough to cause  marked and severe functional limitations). Most of the listed impairments are  permanent or expected to result in death, or the listing includes a specific  statement of duration. For all other listings, the evidence must show that the  impairment has lasted or is expected to last for a continuous period of at  least 12 months. The criteria in the Listing of Impairments are applicable to  evaluation of claims for disability benefits under the Social Security  disability insurance program or payments under the SSI program. The criteria in the Listing of Impairments apply only  to one step of the multi-step sequential evaluation process. At that step, the  presence of an impairment that meets the criteria in the Listing of Impairments  (or that is of equal severity) is usually sufficient to establish that an  individual who is not working is disabled. However, the absence of a listing-level impairment does  not mean the individual is not disabled. Rather, it merely requires the  adjudicator to move on to the next step of the process and apply other rules in  order to resolve the issue of disability. Now remember back in the beginning part where it states that you qualify for disability because you can't work?? Scroll up and re-read that part it's at the beginning then scroll back down and read the following. To qualify for Social Security disability benefits you must have worked long enough in jobs covered by Social Security (usually 10 years) then you must have a medical condition that meet's Social Security's definition of disability. If you are confused by this then you are not the only one. It takes three-to-five months to get a decision on your disability application and sometimes even longer than that for more on the waiting time please click here http://www.socialsecurity.gov/appeals/DataSets/01_NetStat_Report.html for more information. Not exactly a small waiting period. If you are eligible for Social Security benefits, there is a five-month waiting period before they can begin your benefits. So do be prepared for a very long wait.
Benefits for a widow, divorced widow, widower, or divorced widower
you cannot get benefits if you remarry before age 60, and you cannot get benefits if you are disabled and remarry before age 50. Once you get SSI if you qualify you are not in the clear you are not home free by a long shot. The law requires you report your wages if you get SSI. Periodically, they review your eligibility for SSI to verify if you get correct payment amounts. In these reviews, they ask about your income, resources and living arrangements - things that can change over time. Even though your disability can't change cause there is no cure they are going to do that anyways. To read all this information for yourself in case you don't believe me click here http://ssa.gov/ and have fun finding your way around when I was looking for information it was like a game of hunt and peck. Unfortunately, when anyone with a disability is filing a claim and looking for assistance as they have a disability that has no cure and they provide all the information and get diagnosed and interviewed within an inch of their lives they are often denied the first go round. I know I was. If you don't believe me click here http://www.disabilitysecrets.com/disability-denial.html for information on the rate of denial and it's not exactly a small number. You can be denied SSI if you earn too much income, your disability won't last long enough or isn't severe enough, the SSA cannot find you, you refuse to co-operate, you fail to follow prescribed therapy, your disability is based on drug addiction or alcoholism, you have been convicted of a crime, and/or you commit fraud and for more information on that please click here http://www.nolo.com/legal-encyclopedia/social-security-disability-reasons-denial-32396.html  I was one of those turned down as they said I was not severe enough to qualify for assistance. As to why so many American's get turned down for SSI please click here http://www.fool.com/retirement/general/2014/09/06/social-security-disability-why-do-so-many-american.aspx for more information. For more stories of the nightmare that is SSI please click here http://www.bostonglobe.com/metro/2010/12/14/cruel-dilemma-over-ssi-for-those-cusp-adult-life/UvdLXUskjOQ8dmG3YTFEJK/story.html  and read through it if you can it's simply heartbreaking. One other final story I will bring to your attention is this one please click here http://www.frontiernet.net/~lindaf1/bump.html it's a long read but I strongly encourage you to please read all of it. Her story is worth the read plus she provides more information and links in her story so do please read all of it. Also, another huge bump in the road of special needs is not many companies hire those who have special needs for more information on that please click here http://www.salon.com/2013/08/07/americans_with_disabilities_may_be_the_best_workers_who_cant_get_jobs_newscred/ 

and if you're the CEO of a company and your company does not hire those with special needs then you need to change that or shame on you. Many parents of special needs children and adults lay awake at night every night worrying what will happen to their children especially if they end up on the street. If the government doesn't give the help and no one hires the adult with special needs they have nowhere else to go but a homeless shelter. Sure their parents can look after them but chances are the adult with special needs will outlive their parents so what happens to them when their parents die?? Maybe other family members can take them in maybe but not every family is a loving family that will do that. So most of the time adults with special needs end up on the street it's a reality. Also most companies only hire those with experience very few are willing to train at all which puts most people in a spot as you need the experience to get a job and can't get a job without experience so it's a vicious circle and due to this many people these days are lying on applications and in interviews just so that they can work. Many adults with special needs have no experience as many try to get help from the government so they don't work or volunteer at all because they will be asked if they already work or volunteer at all and those who decide if you get assistance or not figure if you can volunteer you can work so after filing for assistance during that long wait then the denial they are not working or volunteering. All of us with special needs are willing to work and want to contribute to society but are unable to do so. Many of us with special needs are unable to go to college to learn what we need to as we can't afford it and we require assistance to learn that is not provided in college. Many people say we should overcome our disabilities as if they are a virus and we have some cure for our disabilities that we are not sharing. None of us with special needs work up one day and said: "today I'll give myself a learning disability so that my life can be miserable and then no one will help me with anything and wow I just can't wait." We didn't choose to have special needs. It's not the parent's fault either. If you're a parent of a special needs child IT'S NOT YOUR FAULT you did nothing wrong absolutely nothing. Also, know that if you're the parent of a special needs child your kid loves you they may not be able to say it or show it but your child with special needs loves you. If you have special needs please know IT'S NOT YOUR FAULT you didn't do anything to cause it you're not weird you're not odd and you're definitely not stupid. As Dr. Temple Grandin said different not less. I love how one person worded it. I stumbled across this on Tumblr it's a description of what it's like with Autism/Asperger's but really this can be applied to any learning disability and it's a right on an apt description. This is from the Tumblr user alice-royal and this is word for word what she said

"Okay, so I’ve seen waaaaaaay too many posts lumping autistics in with mental illness groups and it’s not cool because they are completely different.
Mental illness is the equivalent of a PC with a virus. It is a working computer with its own personality that the virus has attacked and affected in its own unique way. My depression and anxiety are not a part of me and I do not like them and they change the way I think/feel/act from my ‘normal’.
Autism is the equivalent of a Mac or Linux in a world of PCs. PCs think you’re defective because you appear to be a PC with a virus but in reality, you’re a WHOLE OTHER OPERATING SYSTEM with all the strengths and weaknesses of any other, that just happens to be different from the majority of computers. But being a Mac is not a problem in the same way that being a PC with a virus can be a problem.
Macs can get viruses–autistics can have mental illnesses, and people with mental illnesses can be autistic. But the two are not synonymous. We do not have the same terminology or community or anything. This doesn’t mean that it’s not okay to learn how to cope with mental illness or even be proud of it.
Some people are treated for or recover from mental illness. You cannot change being autistic. You cannot treat being autistic. You cannot recover from autism.
You cannot spend a lifetime trying to turn a Mac into a PC. You should learn how to protect and love both Macs and PCs."

That is the most perfect description of special needs that I have ever read.

Also a message to the Church worldwide you know who you are. GOD created those with special needs and so I hope and pray that someday every Church has a special needs ministry for children, teens, and adults. Those with special needs have already been rejected numerous times by numerous people and have been bullied and picked on and more we don't need the same treatment from the Church we need acceptance for who and what we are. Church you need to step up and have special needs ministries for those with special needs.

Also if you have special needs and you're wondering why you are different why do you have special needs. First off don't let anyone say you're not normal because seriously do define normal. What's normal anyways?? Here is the reason why you have special needs "As He went along, He saw a man blind from birth.  His disciples asked Him, “Rabbi, who sinned, this man or his parents, that he was born blind?” “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him." John 9: 1-3 NIV. Know it or not you have special needs to give GOD glory and that may not make any sense to you right now but it will someday so let it sink in.
 
I rarely do this but this is important I'm going to ask you to please spread this blog entry around I want at least everyone in America to read this whole blog entry. So e-mail this to everyone you know share this on every social media that you have paste it everywhere, please. Also please pray for everyone you know and don't know who has special needs as believe me we need the prayers badly.

GOD bless you
Jenny
  
 
 


















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